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How is the coronavirus pandemic affecting your life right now? Tell us about your experiences, feelings, and thoughts.

In week 2 of lockdown of the UK. I’m recovering from a nasty chest infection (pneumonia), and hospital admission, after being mismanaged for 2 months (GP consults by telephone and each time given antibiotics (4 courses) with no face to face examinations. Telephone consults have been the normal since last March, and proves to be great for some things, but leads to some things being missed like simple observations being recorded for the patient. Tested negative for CoVID, but post infection fatigue causing all sorts of strange symptoms similar to the long term symptoms some have called Long COVID, so now medics say maybe I’ve actually had CoVID. I don’t think I have. Long CoVID and indeed any post infection fatigue seems to be dismissed as one of those things, and no real universal support, or advice offered. I have found my own resources and explanations and theories by reading around the area of post infection fatigue and links to Long CoVID. All very helpful, as I have a medical background and I can do this- feel very sorry for those that [can't] access this good help and advice. Been a game changer last few days. Read a lot on the theories on physiology and on treating ME, and post viral & post infection fatigue, and it being similar to Long CoVID. This has given me ways to plan, pace and manage my strange symptoms of fast heart rate, extreme fatigue episodes, caffeine intolerance, body fizzing sensations and times where my body can’t regulate its temperature. Learning to read these as signs to rest, and recover. Acceptance is key to the slower pace and time off work. Recovery has begun, but we are all shielding so none of us have left the house. Also homeschooling has made this a challenge.

January 26, 2021

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